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Birthmark Support Group (1025526)

Address:

London
London
Tel (Main): 0845 045 4700
Email: info@birthmarksupportgroup.org.uk
Website: www.birthmarksupportgroup.org.uk

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

Group Aims * Provide support and information to anyone who has a birthmark, and to support not only the person with the birthmark, but the whole family. * Ensure a better understanding amongst the medical profession about types of birthmarks, possible complications and treatment, not only of the birthmark but of the whole person. * To aid research into the cause of birthmarks (so far unknown) and possible cures. * To raise general awareness and acceptance.

British Association of Skin Camouflage (1027526)

Address:

BASC (British Association Skin Camouflage), PO Box 3671
Chester
CHESTER
Tel (Main): +44(0) 1254 703107
Email:
Website:

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

Our main objectives is to alleviate the psychological, physical and social effects that an altered image can have on someone's life by the simple application of specialised skin camouflage.

DebRA-Dystrophic Epidermolysis Bullosa Research (1025053)

Address:

DebRA House 13 Wellington Business Park Dukes Ride
Crowthorne
Berkshire
Tel (Main): 01344 771961
Fax: 01344 762661
Email: debra@debra.org.uk
Website: www.debra.org.uk

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

* Leading the world in identifying and funding specific research projects likely to lead to a cure and successful treatments for EB * Establishing specialist treatment centres * Providing a dedicated EB healthcare team of children’s and adult nurses, a dietitian, welfare support and social workers to pioneer improvements in care, that have led, amongst other things, to children with RDEB no longer being frail, underweight and malnourished * Enabling prenatal diagnosis to be made at a much earlier stage * Making skilled counselling and expert guidance on current legislation and governmental services available to EB families, to improve their quality of life. * Raising awareness of the issues surrounding EB to the general public, healthcare professionals, schools, and other interested parties.

National Eczema Society (1001778)

Address:

Hill House Highgate Hill
London
London
Tel (Main): 0800 089 1122
Fax: 020 7281 6395
Email: helpline@eczema.org
Website: www.eczema.org

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

The National Eczema Society's Email helpline provides practical, high quality information and support about the management and treatment of eczema.

Pemphigus Vulgaris Network (1025609)

Address:

Flat C 26 St Germans Road
London
London
Tel (Main): 020 8690 6462
Email:
Website: www.pemphigus.org.uk

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

The United Kingdom support group for people living with Pemphigus and Mucous Membrane Pemphigoid. You can telephone 020 8690-6462 between 8.30 and 10am in the morning (owing to lack of funding they are unable to return phone calls). You can contact also the PV Network by writing with a stamped addressed envelope .

Scleroderma Society (1025421)

Address:

PO Box 581
Chichester
Sussex
Tel (Main): 0800 311 2756
Email: info@sclerodermasociety.co.uk
Website: www.sclerodermasociety.co.uk

Organisation Details:

Organisation Type:
Health-Skin Conditions

Description:

The society's aims are to * help and support people with scleroderma * increase awareness of scleroderma * fund scientific and medical research:
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Disability Essex
Centre for Disability Studies
34 Rocheway
Rochford
Essex
SS4 1DQ

Telephone: 0844 412 1771

Facsimile: 0844 880 0614

Email: info@disabilityessex.org

Charity No: 1102596

Company No: 4980118