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CMT UK (1025547)

Address:

PO Box 5089
Christchurch
Dorset
Tel (Main): 01202 481 161
Email: secretary@cmt.org.uk
Website: www.cmt.org.uk

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

Working to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy, conditions that affect the nerves in the legs and arms.

Joseph Patrick Trust (1025762)

Address:

61 Southwark Street
London
London
Tel (Main): 0207 803 4800
Fax: 020 7498 0670
Email: info@muscular-dystrophy.org
Website: www.muscular-dystrophy.org

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

The Joseph Patrick Trust (JPT) is the welfare trust of the Muscular Dystrophy Campaign, it provides vital financial support towards specialist equipment to help promote mobility and independence for people with muscular dystrophy, or a related muscle disease. Grants may be available to people with muscular dystrophy to help people to purchase specialist equipment such as mobility equipment and adapted computers. Discretionary payments can be made for funeral expenses and other emergencies. No grants are provided for items which statutory authorities, such as the NHS or Social Services, should provide.

Muscle Help Foundation (1002242)

Address:

UK Campaign Headquarters PO Box 155
Buntingford
Hertfordshire
Tel (Main): 01763 274 658
Email: michael@musclehelp.com
Website: www.musclehelp.com

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

Muscular Dystrophy Campaign -Headquarters (1024961)

Address:

61 Southwark Street
London
London
Tel (Main): 020 7803 4800
Fax: 020 7401 3495
Email: info@muscular-dystrophy.org
Website: www.muscular-dystrophy.org

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

As a charity, they provide people who have neuromuscular conditions, and their families, with information and advice about their condition and ways in which living with it can be made easier. They fund (with some contribution fromthe NHS) 13 MDC Care Advisors who are based in clinics around the country. They are on hand to give advice and support to people who are affected by neuromuscular conditions. The Joseph Patrick Trust, which is part of the Muscular Dystrophy Campaign, provides part funding towards the cost of equipment.

Muscular Dystrophy Campaign-East Anglia (1027109)

Address:

Tel (Main): 01787 313913
Email:
Website: www.muscular-dystrophy.org

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

Contact-Anne Jackson

Myotonic Dystrophy Support Group (1025607)

Address:

35a Carlton Hill Carlton
Nottingham
Nottinghamshire
Tel (Main): 0115 987 0080
Fax: 0115 987 6462
Email: mdsg@tesco.net
Website: www.mdsguk.org

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

Aim is to offer the hand of friendship and support to those affected by Myotonic Dystrophy and their carers.

Sarah Matheson Trust for Multiple System Atrophy (1025617)

Address:

Neurovascular Medicine Unit(Pickering Unit) St Mary's Hospital Praed Street
London
London
Tel (Main): 020 7886 1520
Fax: 020 7886 1540
Email: office@msaweb.co.uk
Website: www.msaweb.co.uk

Organisation Details:

Organisation Type:
Health-Muscular Problems

Description:

The UK support charity for people living with, and caring for, the neurological disorder Multiple System Atrophy (MSA). Information and support for people living with MSA and their families and aims to raise awareness of the condition.
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Disability Essex
Centre for Disability Studies
34 Rocheway
Rochford
Essex
SS4 1DQ

Telephone: 0844 412 1771

Facsimile: 0844 880 0614

Email: info@disabilityessex.org

Charity No: 1102596

Company No: 4980118